Information about the norwegian AMC-association
The Norwegian association for Arthrogryposis Multiplex Congenita (The AMC) was founded in 1987.
The Norwegian association for Arthrogryposis Multiplex Congenita (the AMC) was founded in the fall of 1987 by amc diagnosed persons. Today AMC-association holds almost 100 people of all ages, where half of these are diagnosed. Many of the new members are children with amc and their parents. The AMC-association is organised as a national association and holds membership as at the same time an independent part of the Norwegian Association of the Disabled (NAD). All the members of the AMC-association are individual members of the NAD. While the work of NAD is primarily directed towards the way society creates barriers and problems to disabled people. The AMC-association work is more related to the diagnoses or circumstances of the life and situation of people with amc. NADs counseling service
The membership of the AMC-association gives the members right to the advice and counseling service of NAD. The advice and counseling service is built on the ideology of helping people to help themselves. The service gives information about:
- Health- and social rights
- Social security benefits
- Technical aid, cars and parking
- Holiday and leisure
- Accessibility and housing/buildings
- Rules of procedure and complaint opportunities
The counseling is provided by different professionals or persons with background as users and representatives. In contact with diagnosed people – Peer’s workOne of The AMC most important goals is to get in contact with the diagnosed or their family. We provide our members with information about their rights, both concerning circumstances of life and diagnosis in particular and social security benefits in general. The contact with our members is organized through peer’s work witch is built on the ideology of helping people to help themselves. We establish contact between two or more persons with similar diagnosis and/or circumstances of life. A peer is not a professional nor an executive officer but a person who identify with the situation as a physically impaired. Peer’s work contributes to:
- Awareness about your own circumstances of life
- Adapt yourself to new circumstances of life
- Knowledge about diagnosis
- Knowledge about opportunities
Information
An important task for the association is to contribute to increased awareness about the diagnose. We cooperate with TRS – a centre of competence for rare diseases – to spread the information towards different parts of healthcare.
Nordic cooperation
We are also proud to so say that we in 1999 started to cooperate with the other Nordic associations on a board level. The goal of this cooperation is to form combined actions, like peers gatherings and competence workshops about the amc diagnose.